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What Is Coeliac Disease?

How To Recognise Coeliac Disease

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Coeliac disease (pronounced see-lee-ak) is a permanent intestinal reaction to dietary gluten. With coeliac disease, the cells lining the small bowel (intestine) become damaged and inflamed. This causes flattening of the tiny, finger like projections, called villi, which line the inside of the bowel.

The function of the villi is to break down and absorb nutrients in food. When these villi become flat, the surface area of the bowel is greatly decreased, which interferes with the absorption of nutrients from food. This may also lead to deficiencies in vitamins (such as vitamin D, vitamin B12 or folate) and minerals (e.g. iron and calcium).

International research indicates there could be up to 100,000 people in our NZ team of 5 million with coeliac disease and of those 30,000 are likely to be children under the age of 18. However a large proportion of those are unaware they have the condition.    

SYMPTOMS OF COELIAC DISEASE

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Common Symptoms in Adults

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The symptoms of coeliac disease vary considerably. Listed below are some of the commonly reported symptoms which may occur alone or in combination:
  • Fatigue, weakness and lethargy
This may be due to anaemia - where iron or folic acid deficiency are the presenting feature. The anaemia may either not respond to treatment or may recur after treatment until the correct diagnosis is made and a gluten free diet is commenced.
  • Weight loss
  • Osteoporosis (thin bones)
  • Diarrhoea or Chronic constipation
This may begin at any age and is often present for years prior to diagnosis. Some people are more likely to experience constipation rather than diarrhoea.
  • Flatulence and abdominal distension
  • Cramping and bloating
  • Nausea and vomiting

Less Common Symptoms in Adults

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Some other atypical symptoms  or manifestations of coeliac disease include:
  • Easy bruising of the skin
  • Ulcerations and/or swelling of mouth and tongue
  • Miscarriages and infertility
  • Muscle spasms due to low blood calcium levels
  • B12, A, D, E and K vitamin deficiency
  • Skin rashes such as Dermatitis Herpetiformis
  • Neurological issues
  • Difficulty concentrating
  • Bone and joint pains
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Common Symptoms in Children

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Symptoms do not occur until gluten is introduced into an infant's diet – however symptoms most commonly present in the older age group in order of frequency:
  • Persistent abdominal pain
  • Persistent diarrhoea
  • Poor weight gain
  • Lethargy or tiredness
  • Chronic anaemia
  • Bloating
  • Nausea or vomiting
  • Irritability
  • Chronic constipation
  • Large, bulky, foul stool
  • Short stature
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Coeliac New Zealand is available throughout your journey. As part of our community, you’ll get support, advice, and assistance. We work with health professionals, manufacturers, and researchers to raise awareness of coeliac disease in NZ.

Together, we can reach a day when every person with coeliac disease gets diagnosed quickly, lives a healthy life, and has the prospect of a cure.

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Get Involved

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Support your charity – the only not-for-profit supporting Kiwis with coeliac disease. Become part of Coeliac New Zealand now.

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We're recruiting for volunteers - interested? Share your knowledge and experience with others living with the disease. Find out how.

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Learning Resources

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Access the online course, approved by the Division for Pediatric Gastroenterology & Hepatology, Munich, Germany.

Understand coeliac disease

Treatment

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Coeliac disease is treated with a life-long gluten free diet. By specifically removing the cause of the disease, this treatment generally means that the majority of symptoms (and blood test abnormalities) recover completely. Short stature and dental enamel defects are likely to persist, even with a gluten free diet, depending on how well established these are before the diagnosis is made. Recovery is dependent on strict adherence to the diet.

Some people may require an initial period of a lactose free diet in addition to their gluten-free diet. The damage to the villi interferes with the normal breakdown and absorption of lactose (milk sugar) due to secondary lactose intolerance. With recovery of the villi, progressive reintroduction of lactose might be tolerated again.

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Get Diagnosed

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Think you may be Coeliac. Find out what you need to do here

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Online Assessment

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Not sure? Take our free and confidential self-assessment

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About Coeliac New Zealand

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Your partner in
healthy living

Coeliac New Zealand is available throughout your journey. As part of our community, you’ll get support, advice, and assistance. We work with health professionals, manufacturers, and researchers to raise awareness of coeliac disease in NZ.

Together, we can reach a day when every person with coeliac disease gets diagnosed quickly, lives a healthy life, and has the prospect of a cure.

Latest News

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13/12/2024
Celebrating our 50th anniversary blank

This year marks our organisation's 50th anniversary, which is an occasion worth commemorating. A lot has changed in that time, but Coeliac New Zealand's vision remains the same: that people with coeliac disease live healthy lives every day. We raise awareness about coeliac disease and educate others so people with coeliac disease can be included and […]

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20/11/2024
Coeliac Disease Patient Registry blank

Coeliac New Zealand is delighted to partner with the Celiac Disease Foundation to set up a New Zealand Patient Registry on our website. https://coeliac.org.nz/patient-registry/ Who is the Celiac Disease Foundation? The Celiac Disease Foundation, established in 1990, is a leading global patient advocacy organisation committed to accelerating diagnosis, treatments, and a cure for coeliac disease. […]

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15/11/2024
From coeliac disease diagnosis to independence: A guide for parents blank

When a child is diagnosed with coeliac disease, it is common for parents to experience a range of emotions. These can include fear, overwhelm and powerlessness. Some parents may also experience relief at finally knowing the cause of their child’s symptoms. Even as your child reaches adulthood, or when they are diagnosed as a young […]

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